I have always loved (and been amused by) this phrase which, according to Merriam-Webster, is “to act or talk as if one is relaxed and not afraid when one is actually afraid or nervous. He shows a confident manner, but he may just be whistling past the graveyard.”
One of the kindest compliments I receive from people these days regards my “positivity,” “optimism,” and “attitude.” It’s not an act, but it is a conscience choice at times. There are lots of ups and downs that come with cancer, especially with advanced cancer (where cancer has spread to a distant part of the body, or somewhere beyond the primary cancer site).
Thankfully, it’s been a fairly long journey so far, with 10+ years of no notable period of remission and no real break from continuous treatment. Lots of test results to await along the way. I jokingly celebrate with Diana any week that doesn’t involve poking, prodding, or a “needle stick” of some sort. Each result involves a high five, a shoulder shrug, or an “oh, ****.”
One of the things that has allowed me to maintain a largely positive attitude throughout is that I have rarely “felt sick” along the way. Even the rigors of chemotherapy were not as bad as I thought they were going to be. Radiation (six times in 10 years, no less!) has been a comparative breeze. Eight years of hormone therapy has left me with a soft, huggable, lumpy body and a respectable “B cup” (those that wear a bra will understand).
Despite the treatment-related side effects, I have rarely felt as if I have cancer in my body. I have always known it was there… the numbers and the scans tell me that, and often show it. But I have rarely felt it until recently. The constant, cancer-related, lower back pain I have experienced of late has presented a bit more of a mental challenge. But a few courses of steroids have helped get the inflammation down and have made me feel more like my old self. It makes a huge difference in your attitude when you don’t “feel” it as much. It also gives me a great appreciation for other cancer patients and people with debilitating disease that are not so fortunate.
People often confuse “palliative care” with hospice or end-of-life care, whereas it really refers to specialized care that helps mitigate pain and other symptoms resulting from serious, often incurable, disease. For the first time in my life, I am seriously considering “talking to somebody” (a Steve euphemism for talking to a “therapist”). I have done a good job of staying one step ahead of this disease from a physical standpoint, but I anticipate some treatment anxiety when it comes to starting immunotherapy, which is still a bit choppy and unpredictable when it comes to prostate cancer. I just need to find the time to do that, because the mental part of managing this disease is also important.
Until next time,
Steve
Steve you are such an inspiration to all🙏 Prayers for everything you are going through. God please Bless this amazing man with more time here. The world still really needs him . Thank you God
You are in my prayers to St. Peregrine Steve daily